Further Reading/References

  • Principles of Nursing Practice: (RCN 2010)
  • Starved of Care : Investigation into Care of Mrs V (Mental Welfare Commission for Scotland 2011)
  • Report of the Mid-Staffordshire NHS Foundation Trust Public Inquiry (Robert Frances 2013)
  • More Care Less Pathway – Neuberger (2013)
  • Compassion in Practice (CNO England 2012)
  • One Chance to Get it Right: Improving peoples experience of care in the last few days and hours of life (Leadership Alliance for the care of dying people 2014)
  • Caring for people in the last few days and hours of life (SG 2014)
  • The Vale of Leven Hospital Inquiry (The Rt.Hon. Lord Maclean 2014)
  • Dying without dignity: Investigation by the Parliamentary and Health Service Ombudsman into complaints about end of life care (May 2015)
  • Palliative and end of life care Priority Setting Partnership (PeolcPSP) Putting patients, carers and clinicians at the heart of palliative and end of life care research James Lind Alliance – (Jan 2015)

+ Bibliography / suggested reading for end of life care resource

Adams J, Andersron RA, Docherty SL, Tulsky JA, Steinhauser K E, & Bailey DE (2014) Nursing strategies to support family members of ICU patients at high risk of dying Heart and Lung 43, 5 pp406 – 415

Apostol CC, Waldfogel JM, Pfoh ER, List D, Billing LS, Nesbit SA & Morss DY S (2015) Association of goals of care meetings for hospitalised cancer patients at risk for critical care with patient outcomes Palliative Medicine 29 4 pp386-390

Baile WF, Buckman R, Lenzi R, Glober G, Beale EA & Kudelca AP(2000) SPIKES: A six step protocol for delivering bad news to the patient with cancer Oncologist 5 pp302-311

Bruggeman A, Heavey S F, Ma JD, Revta C & Roeland EJ (2015) Lack of documentation of evidence-based prognostication in cancer patients by inpatient palliative care consultants Journal of Palliative Medicine 18 4 pp382-385

Buckle J, Dwyer SC & Jackson M (2010) Qualitative bereavement research incongruity between the perspectives of participants and research ethics boards International Journal of Research Methodology 13 2 pp111-125

Clark D, Armstrong A, Graham F, Carnon A & Isles C (2014) Imminence of death among hospital inpatients: a prevalence study Palliative Medicine doi:10.117/0269216314526443

Clayton JM, Butow &Tattersall MHN (2005) The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end of life issues Cancer 103 pp1957-1964

Cohen A & Nirenberg A (2011)Current practices in advance care planning Clinical Journal of Oncology Nursing 15 5 pp547-551

Connelly M, Perryman J, McKenna Y, Orford J, Thomson L, Shuttleworth J,& Cocksedge S (2010) SAGE and THYME : a model for training health and social care professionals in patient -focussed support Patient Education and Counselling 79 1 pp87-93

Corbin J (2007) Is caring a lost art in nursing? International Journal of Nursing Studies 45 pp163-165

Cosgrove JF, Nesbitt ID & Bartley C (2006) Futility and the critically ill adult patient: a framework Current Anaesthesia & Critical care 17 pp255-262

Crawford P and Brown B (2011) Fast healthcare: brief communication, traps and opportunities Patient Education and Counselling 82 pp3-10

Eliott JA & Oliver in (2009) Hope, life and death: a qualitative analysis of dying cancer patients’ talk about hope Death Studies 33 pp609-638

Ellis J (2013) Thinking beyond rupture: continuity and relationship in everyday illness and dying experience, Mortality: promoting the interdisciplinary study of death and dying DOI:10.1080/13576275.2013.819490

Enzinger AG, Zhang B, Weeks JC & Prigerson H (2014) Clinical trial participation as part of end of life cancer care: association with medical care and quality of life near death Journal of Pain and Symptom Management 17 6 pp1078-

Eyre S (2010) Supporting informal carers of dying patients: the district nurse’s role Nursing Standard 24 22 pp43-47

Dowding D (2002) Interpretation of Social Judgement Theory in Thomson C & Dowding D (eds) Clinical Decision-Making and Judgement in Nursing Chapter 5 Edinburgh/Churchill Livingstone

Ellershaw J (2003) Care of the dying patient in the last hours or days of life: Commentary: A good death is possible in the NHS BMJ 326 7379.30

Folkman S (2010p904) Stress, coping and hope Psycho-oncology 19 pp901-908

Folkman S (2010) Stress, coping and hope Psycho-oncology 19 pp901-908

Frosch D, Legare F Fishbein M & Elwyn G (2009) Adjuncts or adversaries to shared decision-making? Applying the integrative model of behaviour to the role and design of decision support interventions in healthcare interactions. Implementation Science 4 73

GMC (2008) Consent: Patients and Doctors Making Decisions Together. Guidance for Doctors London/General Medical Council

Gustafasson C, Asp M & Fagerberg I (2007) Reflective practice in nursing care: Embedded assumptions in qualitative studies International Journal of Nursing Practice 13 pp151-160

Hauke D & Reiter-theil et al (2011) The role of relatives in decisions concerning life-prolonging treatment inpatients with end-stage malignant disorders: informants, advocates or surrogate decision-makers Annals of Oncology 22 pp2667-2674

Herth K (1990) Fostering hope in terminally ill people Journal of Advanced Nursing 15 pp1250-1259

Highet G, Crawford D, Murray SA & Boyd K (2013) Development an devaluation of the Supportive and Palliative Care Indicators Tool (SPICT) a mixed methods study BMJ Supportive and Palliative Care doi:10 1136/bmjspcare-2013-000488

Horne G, Seymore S & Payne S (2012) Maintaining integrity in the face of death: a grounded theory to explain the perspectives of people affected by lung cancer about the expression of wishes for end of life care International Journal of Nursing Studies 49 6 pp718-726

Hwang SY, Yen M, Lee BO, Huang BC & Tseng HF (2009) A critical thinking disposition scale for nurses: a short form Journal of Clinical Nursing 19 pp 3171-3176

Johns C (1994) The Burford NDU Model Caring in Practice Chapter 2 Blackwell Science /Oxford

Johnson BM & Smith L (2006) Nurses and patients perceptions of expert palliative nursing care Journal of Advanced Nursing 54 6 pp700-709

Johnson BM Milligan S, Foster C & Kearney N (2011) Self care and end of life care – patients and carers experience- a qualitative study utilising serial triangulated interviews Supportive Cancer Care 20 8 pp 1619-1627

Keller M & Sommerfeldt S (2004) Recognition of distress and psychiatric morbidity Annals of Oncology 15 pp12433-1249

Leighl NB, Butow P and Tattersall MHN (2004) Treatment decision aids in advanced cancer: when the goal is not cure and the answer is not clear Journal of Clinical Oncology 22 9 pp1759 1762

Maguire P and Pitceathly C (2003) Key communication skills and how to acquire them British Medical Journal 325 pp697-700

Mann K, Gordon J & Macleod A (2009) Reflection and reflective practice in health professions education: a systematic review Adv. in Health Science Education 14 pp595-621

McCaughan D (2002) in Thomson C & Dowding D (2002) Clinical Decision Making and Judgement in Nursing ch6 Edinburgh/Churchill Livingstone

Mullick A, Martin J & Sallnow L (2013) Clinical review: An introduction to advance care planning in practice BMJ 347:f6064

Mullins LL, Cote MP & Fuemmeler F et al (2001) Illness intrusiveness, uncertainty, and distress in individuals with multiple sclerosis Rehabilitation Psychology 46 2pp139-158

Murray SA, Kendall , Boyd K & Sheikh A (2005) Illness trajectories in palliative care BMJ 2005;330:1007

Murray SA ,Boyd K & Sheikh A (2005) Palliative care in chronic illness: we need to move from prognostic paralysis to active total care BMJ 2005 March 330 7492 pp611-612

NICE (2004) Improving Supportive and Palliative Care for Adults with Cancer: The Manual p15 London/National Institute for Clinical Excellence web: www.nice.org.uk

Paley J, Cheyne H, Dalgleish L, Duncan EA, Niven D & Niven CA (2007) Nursing’s ways of knowing and dual process theories of cognition Journal of Advanced Nursing 60 6 pp692-701

Ray RA, Brown J & Street A F (2014) Dying with motor neurone disease, what can we learn from family caregivers? Health Expectations 17 4 pp466-476

Reilly D (2006) Creating the Therapeutic Encounter: Some comments and references on healing. The encounter begins before the encounter Some references.DOC UPDADTES: www.adhom.com

Ryan P (2005) Approaching death: a phenomenological study of five older adults with advanced cancer Oncology Nursing Forum 32 6 pp1101-1108

Sanders-Dewey NEJ, Mullins LL & Chaney JM (2001) Coping style, perceived uncertainty in illness, and distress in individuals with Parkinson’s disease and their caregivers Rehabilitation Psychology 46 4 pp363-381

SG (2011) Shaping Bereavement Care: A Framework for Bereavement Care Edinburgh /Scottish Government

SG(2011) Living and Dying Well: Building on Progress Edinburgh /Scottish Government

Tang ST,Liu TW, Lui LN, Chiu CF, Hsieh RK &Tsai CM (2014) Physician-patient and end of life care preferences of cancer patients- a cross sectional survey study Palliative Medicine 28 10 pp1222-1230

Thomsen TG, Rydahl-Hansen S & Wagner L (2011) How to be a patient in a palliative life experience? A qualitative study to enhance knowledge about coping abilities in advanced cancer patients Journal of Psycho-Social Oncology 29 3 pp254-273

Wilson E, Seymour J & Perkins P (2010) Working with the Mental Capacity Act: findings from specialist palliative and neurological settings Palliative Medicine 24 4 pp396-402